On parenting a child with Down syndrome
October is winding down and with it, National Down Syndrome Awareness Month. I wanted to share two studies on a key concern of expectant parents when they find out their child has Down syndrome....
View ArticleOn having a brother or sister with Down syndrome
Today is the last day of National Down Syndrome Awareness Month. And, tonight, my son and daughter will go trick-or-treating for Halloween. What is the effect on siblings of having a brother or sister...
View ArticlePeople with Down syndrome love their lives.
We’ve wrapped up National Down Syndrome Awareness Month, but that does not mean the need to raise awareness has ended. This is the third in a series of posts about how parents feel about their child...
View ArticleHappy 30th anniversary National Down Syndrome Awareness Month
October was proclaimed National Down Syndrome Month in 1984. How do you plan to celebrate this 30th anniversary? Describing the picture above, from the Centre County Down Syndrome Society: On September...
View ArticleLouisville Premiere: “Produce” the Movie!
This Saturday night is the Louisville premiere of the movie Produce. What a great way to kick off National Down Syndrome Awareness Month. This Saturday, as part of the Louisville IdeaFestival, the...
View ArticleDon’t predict what a person with Down syndrome can’t do
This Saturday, after our local Down syndrome awareness walk, the film “Produce” had it’s Louisville premiere. It showed how you can’t predict what a person with Down syndrome will be able to do....
View ArticleInto our 2nd decade of Down syndrome awareness walks
My family attended our local Down syndrome walk for the 11th straight year. If you haven’t already, I hope you’ll make this year your first of many of attending your local organization’s walk. Our...
View ArticleMedical outreach as cosmic justice
This past weekend, I trained the Bloomington, Indiana-based parent support organization, the Down Syndrome Family Connection, on engaging in effective medical outreach. What I didn’t share at the...
View ArticleThe “tender languor” of Down syndrome
What if one of the ways you could diagnose a person’s genetic condition was based on how their body feels? This is what happened with our postnatal diagnosis of our daughter Juliet. After the...
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